So, my daughter is scheduled to have a really important anoplasty surgery done on the 26th and things are getting real.
She has had over a dozen procedures before, including the PSARP surgery when she was born. Unfortunately the original surgery was done by a general pediatric surgeon (no one at the hospital where she was born led me to believe that this was such a rare procedure and ought to be done by a anal-rectal malformations specialist.) who did it incorrectly. My daughter has been seeing a specialist for over a year now, who wants to attempt to redo the surgery. She is completely incontinent right now, but he hopes that placing anus in the correct place where there is some muscle might improve her ability to control her bowels. The surgery is risky in that there is scar tissue from the previous attempt and a second surgery done to correct a prolapse. (Should have been a sign that the first surgery was not done well.)
Depending on what the doc finds when he opens her up, he may decide to do an ostomy so that she will poop in a bag while it heals. This is the part of the procedure that worries me the most. Based on what I’ve read in the support groups for people with this birth defect, the ostomy reversals are common causes of complications. I hate to put her through all this and then for the surgery to not even help her, but I don’t want to face elementary school being incontinent if it can be avoided. I’m also worried that her new school will not allow her to attend with the ostomy, though I think they may have to legally.
I thought I was okay with the plan, but as the date gets closer, I get more and more worried and doubtful. It doesn’t help that the surgery is taking place in the hospital where she stayed for two weeks after the “button battery incident”. I think I still have a little bit of residual trauma over that whole ordeal. She hasn’t had any other major surgeries since then. (just an out-patient eye surgery and gel procedure for bladder reflux.)
I already put a request in the prayer intentions forum, but I was wondering if anyone had any advice for dealing with this kind of anxiety? We have a wonderful three weeks ahead of us with a planned vacation and celebrations for the 4th of July holiday and family events and I don’t want to ruin the fun with stress!