I am not surprised that you have not found what you are looking for within your church community.
I have a special needs child too and I find that there is not support available in our churches. There really isn’t any support for moms in general. There seems to be a lot of retired people / elderly programs and there is the Knights of Columbus and a Men’s group, but there is only a alter group for women and they just clean together. I actually went on our parish’s website and looked through all of there programs and not a single one was for moms, small children, families, special-needs people, etc… Not a single one, yet we have no less than 30 other programs.
When I was working, my children had to attend secular or Jewish daycare even though I would have preferred to send them to a Catholic one. I have yet to find a Catholic daycare! Anywhere??!! How many Catholic mothers out there have to work?? More than a handful, I am sure! I would have also liked to have networked with other young mothers, but there seems to be no forum for this in any of the churches that I have attended. So, trying to find a support network for special needs parents seems so far-fetched for me. It has been a disappointing experience for me. Since we have received my daughter’s diagnosis, we have needed the support more than ever and it just seems to be nonexistent.
It is interesting…the Catholic church sends the message that we should marry in the church, have children (if we can), raise the children in the faith and practice our faith right down to sticking a thermometer in our mouths every morning to form all of these charts, but once the children are here, it is time to support the families, show leadership and caring to families of special needs children, or even network other parents to support one another. The Catholic communities fall flat on this note. It is really sad. There are times when I need this support and fellowship and it is simply not there. Even the offer for a prayer or two said on behalf of my daughter would bring comfort to us, but our church has no forum for this.