Very interesting article, Robyn! A single dose injection costs $125,000, according to the article. This kind of profiteering on human misery is crazy, but I’m sure the pharmaceutical company will simply counter that they spent enormous amounts of money researching it and testing it and getting it approved, and so their price is justified.
This argument is currently much talked about in Washington state, because recently a very, very expensive cure for Hepatitis C was made available to all Hepatitis C patients. It’s legally mandatory for physicians to supply the drug to any Washington resident who’s afflicted with the disease, regardless of income or lack of health insurance. Meaning, this expensive drug called Harvoni, which costs $1000 per pill and which has a very, very high cure rate, has to be given to anyone with Hepatitis C. Which is great, because Hepatitis C is a deadly disease, and a huge global epidemic. So the pharmaceutical profiteering is now the problem of the state government, not individuals. And by the way, anyone reading this who has friends or relatives with this illness, you might take this into consideration. Establishing residency in Washington state to be treated and cured, might well be worth it.
I don’t want to hijack your thread by the way, Robyn. It just seems like this is exactly the same kind of thing. I’m pretty sure the way these ludicrous medicine prices are overcome is by people who have the disease filing lawsuits against both the pharmaceutical company, as well as against there own health insurance company. Because if this form of muscular dystrophy is fatal, then it would seem to be out-and-out murder to withhold the medicine because someone’s too poor to pay for it. I’m sure that’s how it will unfold.