I got off the phone with my 12 year old daughter a little while ago. She called me from school. She is a Type 1, Insulin Dependent Diabetic, was diagnosed only a couple months ago. Her blood sugar dropped today, she feels bad, has a horrible headache and needed to know what to do. Just moments later a group at my office just brought me some sushi for lunch. Plus 3 cakes, each with candles on top, and a FIRE EXTINGUISHER.
For the record, I’m 47. Feel a lot older. Honestly don’t feel like celebrating. My daughter is having a really rough time with her diabetes and it is taking a toll on all of us. It has completely changed our lives and I know that I will be making some big changes. She has to test her blood sugar about a dozen times a day, and give herself insulin 3 to 5 times a day.
She has to call me every day from school when her blood sugar numbers are too low. I’ve been getting calls virtually every day. The doctors are dumbfounded and the FDA recently approved a pediatric monitor that we are going to try to get for her. She would have to have an implant in her skin, it would then connect to the monitor by radio frequency and sound alarms if her blood glucose level goes out of the doctors “target” range so she could take corrective action. I didn’t post it, but about a week ago we had a very critical issue with her at night, damn scary for all of us. Today she feel horrible, bad headache from her sugar dropping too fast. Her grades are also suffering and that is putting her under some stress. She’s always been in the top 2 or 3 kids in her class for grades, but she has actually gotten a “D” on one test and an “F” on another in a different class. Her semester grades are 2 Bs and the rest are As. But I don’t think she has ever gotten a B on a report card so she is putting pressure on herself to get her grades up and that is probably also a bad thing. So she feels bad, hates to do bad in school, and just wants to be a regular kid.
I have another call into the hospital to talk to her doctors, as soon as they call back I’ll be leaving work to go pick up my daughter and take her home.
Lots of presents at the house, not a lot to celebrate. I guess I’m just feeling sorry for my daughter and myself. My wife has plans for us to go to a new restaurant tonight, but she cancelled those after getting the email update after the phone call. Hopefully we’ll go up to Chicago’s Chinatown on Sunday after mass. We all love that and it would make for a good day for my daughter.