Thank you for sharing and a heartfelt virtual handshake and congratulations on the birth of your beautiful boy, I too am a parent of a young boy , coming on 3 years now with that “little something extra” trisomy 21 that causes down syndrome. His Name is Noah
we knew in the third month in utero, and he came into the world on Sept 29 just as i had asked whispering to him shy of 3 months earlier through his mum’s tumz.
i beg patience qouting ur questions again its more just to help me stay on course. Im not a good writer and i can get a bit tangential at times as u can see.
U shared “I am struggling to find meaning in it. God doesn’t make mistakes, does He? So, is my son being burdeneded with his disorder for a reason? Is it punishment of some sort or is it a gift of some sort?”
I was there. and not to be didactic this really helped me so very much.
John Chapter 9:1-2
1 As he passed by, he saw a man blind from his birth. 2* And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” 3* Jesus answered, "It was not that this man sinned, or his parents, but that the works of God might be made manifest in him.
I’ ll share this :last month a Daddy date ( moreso a really a good lesson for this old man to practice some multitasking skills), Noah and i went out to lunch to visit a dear old friend i went through RCIA with, 3 and a half yrs ago, (im still waiting to come into the church annulment going through). Any way my friends are very devout he a convert and his wife cradle catholic and even better Polish to boot …anyway, they have the picture of the Divine Mercy on their wall, there just off of their kitchen. Well my little man, has a delay with speech, and while he knows signs he has about 4 words and at the time of this visit then wasn’t talking very much. Well that said, heres then what went on : while i was distracted scanning for objects to keep safe, Noah left my side and walks up to the Divine Mercy there and points and starts uttering sounds pointing to it all again in his version of here. We were all stunned… then my friends laughed and said yes and while my heart broke in two our boy goes to over to another wall bearing a framed reproduction of the Sacred heart and does the very same thing looking up at the picture and back again to my friends all the while.
He Knows as he does with our boys and girls, and its all going to be ok.
Regarding what the church has to say about people being born with genetic disorders? I dont really know, my hunch is like Jesus , its beautiful and good and oh so true, And as evidenced by the life of Pope John Paul II , its been written by others that our Late Pope had a special fondness for our children. Mentioned so in Peggy Noonan’s short bio and there in the Miracles of John Paul II by Pawel Zuchniewicz . Their great books, even Noonan’s, and each brought me to my knees when chancing upon their passages that mentioned our ‘little ones’ and brought peace.
We are called, and yes we can drink the cup that has been given to us. We are great parents for we have great models the very best. Mary, and St Joseph are ours. Every day i make a point to go to them, they keep me and yes it really helps. They and the great cloud of witnesses St Paul speaks of: Saint Therese of Lisieux, her parents… and Padre Pio and St Joseph of Cupertino too have helped me in my weakness and i’ve learned to let go and lean on them. Padre Pio is great for that bonk on the head when pride steps in and im feeling sorry for myself, as I’ve read he wasn’t adverse to doing that and for that i luv him.
But the one who really has helped me understand the Mystery and is a closest to a church teaching aside from Jesus, is his mom. Mary, i think of her when i give my son a bath…which is every night as my wife cleans up dinner. I think of her thoughts overlooking the whispers of townsfolk that didnt beleive her or cast looks at her son, and if she caught there glance looked away… i think of when she bathed him and wonder what songs they might have sung together … perhaps this is all an echo of that pivotal scene in the most beautiful Movie of all The Passion. But great Art does that. It calms and makes us grow, Pardon this digression, But our Lady helps so much and do be assured i spend more time stumbling. So much so I often think of Mt Tabor and have learned to accept that touch on his terms and not mine … and listen; to rise and be not afraid, and learn to be like Mary and St Joe… fiat mihi…be it done to me, and just as there in the Fiat of our Lord with there in Gethsemene. We can do it , you and i we can do it for Them. Our children remind and teach us this. Every day.
Like u im learning and Monicad states it so wisely (ty Monicad!!!) and i thank you for your courage in reaching out and for this opportunity because it reinforces and reminds all again.
This post is a getting a tad long, talk about tangential, pardon me,
Aside from Luke, John and Ephesians the following is short list of books that i go to often …
Story of a Soul: The Autobiography of St. Therese of Lisieux, Third Edition (Paperback)by Therese de Lisieux (Author), John Clarke (Translator) .
had this in the hospital and it rocks…her Little way brings so much understanding to it all.
Man and Woman He Created Them: A Theology Of The Body by John Paul II (Author), Michael Waldstein (Translator)
anything by this great holy man…ive read this in pieces and it has taught me to look at my son and my wife in a whole new light.
and this for those days…when im futurizing and im trying to oversteer the situation …
He Leadeth Me (Paperback)
by Walter J. Ciszek
I am thinking of you and yours, and that beautiful boy and will so again in prayer and again thank you for ur courage in posting and starting this thread.
+under the mercy