I need some help.
I live and work in NY as Software Engg. I am writing this for my cousin Anju, in India.
She has MPS Mucopolysaccharidoses (VI - Maroteaux-Lamy syndrome).
I work in US, Anju is in India now. She is in serious condition. Treatment are very advanced here and better than India.
I can afford to bring her to US, but, I cannot afford her medical care here.
I need your prayers.
Also I need some help about how to go forward, Can some hospitals help us or any organizations or Individuals you know?
If you want to know more about MPS: Read below
MPS VI, which is a rare form of MPS, is caused by a deficiency of the enzyme N-acetylglucosamine-4-sulphatase. This condition is also variable; individuals may have a mild or severe form of the condition. Typically, the nervous system or intelligence of an individual with MPS VI is not affected. Individuals with a more severe form of MPS VI can have airway obstruction, develop hydrocephalus (extra fluid accumulating in the brain) and have bone changes. Additionally, individuals with a severe form of MPS VI are more likely to die while in their teens. With a milder form of the condition, individuals tend to be shorter than expected for their age, develop corneal clouding, and live longer. The gene involved in MPS VI is believed to be located on the long arm of chromosome 5 (approximate location 5q11-13).