I need help!.


#1

Dear Friends,

I need some help.

I live and work in NY as Software Engg. I am writing this for my cousin Anju, in India.

She has MPS Mucopolysaccharidoses (VI - Maroteaux-Lamy syndrome).

I work in US, Anju is in India now. She is in serious condition. Treatment are very advanced here and better than India.

I can afford to bring her to US, but, I cannot afford her medical care here.

I need your prayers.

Also I need some help about how to go forward, Can some hospitals help us or any organizations or Individuals you know?

Please respond.

If you want to know more about MPS: Read below

MPS VI, which is a rare form of MPS, is caused by a deficiency of the enzyme N-acetylglucosamine-4-sulphatase. This condition is also variable; individuals may have a mild or severe form of the condition. Typically, the nervous system or intelligence of an individual with MPS VI is not affected. Individuals with a more severe form of MPS VI can have airway obstruction, develop hydrocephalus (extra fluid accumulating in the brain) and have bone changes. Additionally, individuals with a severe form of MPS VI are more likely to die while in their teens. With a milder form of the condition, individuals tend to be shorter than expected for their age, develop corneal clouding, and live longer. The gene involved in MPS VI is believed to be located on the long arm of chromosome 5 (approximate location 5q11-13).


#2

First of all - we will pray for your cousin and hope her treatment is successful.

As for help - I’m not sure about this. Posters are not supposed to give medical advice - but you could ask your own doctor about a referral given the circumstances and her doctors in India could make the referral to that specialist.

God Bless and we pray for her health both mind and body.


#3

Praying…

Hail Mary, full of grace, the Lord is with Thee, Blessed art Thou amongst women, and blessed is the fruit of Thy womb, Jesus.
Holy Mary, Mother of God, pray for us sinners now and at the hour of our death. Amen


#4

I’m praying for your cousin now…

I would also contact your local Health Department and see if they can help you with a doctor specializing in this care that might can help you. God Bless!


#5

Praying for your cousin. :gopray2:


#6

Praying for your cousin.


#7

Praying for your cousin!


#8

You are in our prayers.

Check out this site.
ninds.nih.gov/disorders/mucopolysaccharidoses/mucopolysaccharidoses.htm

God Bless you and your sister.


#9

My prayers are with you :crossrc:


#10

Praying for your cousin. I have heard on several spanish TV stations how doctors here in America hear of a sad medical case in another country and offer their services for free, but the hospital still has to be paid.

Praying.


#11

I will pray for your intentions.


#12

Will be happy to pray, and you might also ask your church if they know of a way to help sponsor her medical treatment


#13

Thank you for you continues prayer. I will look into all the options to help Anju.

God Bless you all.

-Millon


#14

:byzsoc::byzsoc:


#15

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