I would say, get a lot of medical advice, before you decide that having a baby of your own is out of the question. Especially since even with ABC, pregnancy can still happen. Be 100% sure of the risks, the odds, etc. God can still do miracles you know.
I wish you the best of luck with your marriage. Be sure to get detailed information from a specialist in Marfan Syndrome. Even if it’s just through email, you will know enough to talk to your priest about the situation.
Here, I just found this on marfan.org it seems that her aortic root measurement is crucial to her prognosis for pregnancy. It looks as though perhaps pregnancy is not 100% ruled out, but it will need to be managed carefully.
I have Marfan syndrome and I want to have a baby. What should I do before I become pregnant?
There are several things to consider before becoming pregnant:
* Have an examination with your family doctor or internist to evaluate your overall health.
* Visit your cardiologist and have an echocardiogram to make sure your aorta is not at a size that would make pregnancy too risky.
* See a perinatologist (maternal-fetal medicine specialist or high risk obstetrician) to talk about specific issues related to pregnancy and Marfan syndrome.
* Consult with a clinical geneticist or genetic counselor to help you and your partner understand how Marfan syndrome is inherited and to learn about the choices you have.
Am I at greater risk of medical problems while I am pregnant?**
All women with Marfan syndrome are at increased risk for complications during pregnancy. Therefore, it is important that you are cared for by an obstetrician with the experience and expertise needed to manage potentially life-threatening heart problems. You should also be carefully followed by your cardiologist throughout the pregnancy, with echocardiograms done at least every three months.
There are not a lot of studies in this area, but available research shows that:
* Women with an aortic root less than 4.0 cm are at very low risk for a rapid change in aortic size or aortic tear during or immediately after pregnancy.
* Women with an aortic root above 4.0 cm are at greater risk, and this risk appears to increase proportionally to aortic size.
*** Women with Marfan syndrome with an aortic root of more than 5.0 cm are at extreme risk during pregnancy. In this case, pregnancy is not recommended.**